The National Birth Defect Registry is a data collection and research project sponsored by Birth Defect Research for Children. The registry collects information about birth defects, learning and attention disorders, autistic spectrum disorders, childhood cancers and other childhood disabilities.
According to the National Research Council, 3% of all birth defects and developmental disabilities are caused by environmental exposures and another 25% or more may be caused by an interaction between genes and the environment. To assess these associations, the registry asks about the mother and father’s prenatal and pre-conceptual exposures to a variety of factors.
If you have any questions about participating in the registry and parent-matching project, please call Birth Defect Research for Children at (407) 895-0802, or email our staff.
Please report problems with the registry to staff@birthdefects.org.