How to Make Insurance Work for You
How to Make Health Insurance Work for You If your child is born or later diagnosed with birth defects or disabilities, one of the first things you should do is…
Category: Fact Sheet Excerpt
How to Communicate with Health Care Providers
How to Communicate With Health Care Providers When your child is born with a birth defect or disability or you suspect that your child may have an undiagnosed problem, you…
How to Find Out More About Your Child’s Birth Defect Or Disability
How to Find Out More About Your Child’s Birth Defect or Disability Parents of a child with a birth defect or disability often feel bewildered by medical terms they don’t understand.…
How to Advocate for your Child
How to Advocate for your Child If you have a child with a disability, you may be confronted by advice from many professionals in the fields of medicine, education and/or…
Holoprosencephaly
What is Holoprosencephaly (HPE)? Holoprosencephaly is a serious brain defect that occurs during the first few weeks after conception. In HPE, the forebrain of the developing embryo does not divide…
Hemihypertrophy
What is Hemihypertrophy? Hemihypertrophy is characterized by a greater than normal (5%) difference in size between the right and left sides of the body. The difference can be in only…
Hemangiomas
What are Hemangiomas? Hemangiomas are benign vascular tumors (a collection of tiny blood vessels) that occur in 2 to 3 percent of all infants. Although hemangiomas may not be visible…
Heart Defects
What Are Heart Defects? The heart is a pump made of muscle that is divided into four chambers. Blood is pumped into these chambers through four valves that open and…
Hearing Loss
What Is Hearing Loss? Right from birth, babies explore their new world through sound . . . their mother’s voice, household sounds, noises outside. The stimulation babies receive from the…
Growth Disorders
What Are Growth Disorders? Growth disorders are problems in infants, children, and teenagers that prevent them from attaining realistically expected growth. These disorders include failure to gain height and/or weight in…
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