The National Birth Defect Registry is a comprehensive data collection project designed to help answer parents’ question “why my child”?  The Registry was designed with a team of prominent scientists.  Data are collected through an on-line portal that gathers information about all kinds of birth defects, both structural and functional.  The questionnaire also asks about maternal and paternal health, genetic and exposure histories and has two special sections that collect on military exposures in Vietnam and during the Gulf War.

How was the registry developed?

A presentation was made to the National Institute of Environment Health Sciences that describes the development of the registry.

How is the registry data used?

National Birth Defect Registry data has been used to evaluate several national birth defect issues.