Hydrocephalus
What is Hydrocephalus? Hydrocephalus is a Greek word that means, waterhead. Hydrocephalus is an abnormal build up of cerebrospinal fluid (CSF) in the brain that causes ventricles to enlarge and…
Hypoplastic Left Heart Syndrome
What is Hypoplastic Left Heart Syndrome? A baby with Hypoplastic Left Heart Syndrome has an underdeveloped left ventricle, the heart chamber that pumps blood through the aorta to the entire…
How to Get Services for Your Child
How to Get Services for Your Child If your child has been born with a birth defect or another disabling condition, you are not alone. There are many public and…
How to Make Insurance Work for You
How to Make Health Insurance Work for You If your child is born or later diagnosed with birth defects or disabilities, one of the first things you should do is…
How to Communicate with Health Care Providers
How to Communicate With Health Care Providers When your child is born with a birth defect or disability or you suspect that your child may have an undiagnosed problem, you…
How to Find Out More About Your Child’s Birth Defect Or Disability
How to Find Out More About Your Child’s Birth Defect or Disability Parents of a child with a birth defect or disability often feel bewildered by medical terms they don’t understand.…
How to Advocate for your Child
How to Advocate for your Child If you have a child with a disability, you may be confronted by advice from many professionals in the fields of medicine, education and/or…
Holoprosencephaly
What is Holoprosencephaly (HPE)? Holoprosencephaly is a serious brain defect that occurs during the first few weeks after conception. In HPE, the forebrain of the developing embryo does not divide…
Hemihypertrophy
What is Hemihypertrophy? Hemihypertrophy is characterized by a greater than normal (5%) difference in size between the right and left sides of the body. The difference can be in only…
Hemangiomas
What are Hemangiomas? Hemangiomas are benign vascular tumors (a collection of tiny blood vessels) that occur in 2 to 3 percent of all infants. Although hemangiomas may not be visible…
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